Friday, January 30, 2004

Ups and Downs...

Well, we certainly have learned a lot since Josh’s diagnosis. One of the biggest things is that this is quite a roller coaster, highs and lows, good days and bad days. This past week was an “up” week. Josh was feeling good, he started eating solid foods! This is a big deal because it was the first real solid food Josh had since before Christmas. Also, thanks to the wonderful accommodations of the people at The Fountains, Josh was able to do a bit of work (thank you to all of you, you are a great support!!!). On Thursday the family went with some friends to the zoo (expect pictures soon) and they had a great time.

Unfortunately, we then had a “down” day. Turns out Josh has an infection, which is very common for people with lots of chemo and a chest port, etc…. He had a high fever so he checked into the hospital last night (Thursday night). The doctors and nurses were able to get everything stabilized and Josh was able to sleep well. His white blood counts and platelets were low, so he received a platelet transfusion (he didn’t receive blood, just the platelets) and his counts returned to normal (the white blood cells too). He is going to stay in the hospital again tonight and possibly another night, just to make sure everything stays stable. He can’t have any visitors (only immediate family) as a precaution, in case his blood counts go down again. I saw him this afternoon and he looked great! He got to play with Jake and Caily for a bit and that, of course, put a huge smile on his face.

So, now I’m going to put in my “plug” for blood (or plasma) donation. We just want to ask everyone to go out and donate. I’m sure some of you already do, and that is wonderful. We are learning first hand what a miracle it is to give and receive blood (and all of its contents). I also know that many people cannot give for various reasons, but if you can, please do so. If you would like, send me an email when you do so, so that we can thank you, and know how you are helping.

We love reading all of your posts. I print out each page and that way Josh and Gretchen can read them at their leisure. They are a wonderful, up-lifting inspiration. I know some of you are partial to the old fashioned "snail mail", so I don't want to leave you out! If you would like to know where to send mail to Josh, send me an email and let me know.

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